Instructions: Using Community Based Participatory Research and Belmont Principles, addressing one of the two following case studies in a thorough and critical manner to demonstrate your understanding and the importance of these topics. Your responses should total approximately 2-3 pages, please use APA citation and references where appropriate. Ensure you provide logic in how you respond to the questions so that it is not just about answering the question but also provide substance as part of your analysis and recommendations. Due 5/14
Total Points: 10 points
Case Study 1 Air Quality, Asthma, and Community Voice in Eastside Gardens
Context
Eastside Gardens is a historically underresourced neighborhood located near a major freeway and several small manufacturing plants. Childhood asthma rates are 3 higher than the county average. A university research team receives funding to study environmental triggers and proposes installing indoor and outdoor airquality monitors.
A local communitybased organization (CBO), Healthy Homes Collective, has been advocating for environmental justice for years. They agree to partner, but tensions emerge early.
Key Ethical Tensions
- Respect for Persons (Belmont) Some families worry the monitors will collect data that could be used against them (e.g., housing inspections, immigration concerns).
- Beneficence The university wants to publish quickly; the CBO wants slower, relationshipbuilding work and immediate mitigation resources.
- Justice Community members ask: Why is our neighborhood always studied but never helped?
- CBPR Components
- Shared power is uneven the university controls the grant.
- Transparency is strained unclear who owns the airquality data.
- Capacity building is requested the CBO wants training to interpret data.
Students Critical Assessment and Recommendations
1.How should the research team restructure the partnership to align with CBPR principles?
2.(shared decisionmaking, cocreation of research questions, community oversight)
3.How should Belmont principles guide decisions about consent, data ownership, and risk/benefit distribution?
4.What would an ethical datasharing agreement look like?
5.What immediate community benefits should be built into the project?
Case Study 2 Diabetes Prevention in the Riverbend Tribal Community
Context
The Riverbend Tribal Community has rising rates of Type 2 diabetes. A regional health system proposes a diabetesprevention program based on a standard curriculum used statewide. Tribal leaders express concern that the curriculum ignores cultural food practices, historical trauma, and community strengths.
The health system wants to evaluate the programs effectiveness using biometric data (A1C, BMI, blood pressure). Tribal leaders insist that data sovereignty and cultural protocols must be respected.
Key Ethical Tensions
- Respect for Persons (Belmont) Tribal members emphasize collective consent, not just individual consent.
- Beneficence The health system wants measurable outcomes; the tribe wants cultural safety and longterm capacity building.
- Justice Historical exploitation of Indigenous communities raises concerns about who benefits from the research.
- CBPR Components
- Need for cocreation of curriculum with tribal elders.
- Shared governance over data (tribal IRB or advisory council).
- Reciprocity the tribe wants guaranteed training for community health workers.
Students Critical Assessment and Recommendations
- How should the research team adapt the project to honor tribal sovereignty and CBPR principles?
- How do Belmont principles apply when the community not just individuals is the unit of ethical concern?
- What does ethical consent look like in a tribal context?
- How should data ownership, storage, and dissemination be governed?
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